Hi! My name is Dan, I am also known as PeeWeeToms, don’t ask why lol.
For all intensive purposes it is killing me, I have no control over this and neither do doctors at present as there seems to be no way to control it apart from surgery, but I have severe metastasis.
This is my story as told by me, this is the easiest way I could do it without getting upset, so please see the video below and enjoy, its a bit crazy!
I am seriously sick but try not to show it as much as I can, I also always put on a brave face.
Anyways, I am babbling. I have had numerous recurrences and also had surgery last week to remove a sizable sarcoma from my left side, I am also going to need further surgery in the coming weeks.
But, I want to find others with this, mainly to have a coffee and find out more from them. I am not fussed where in the world they are, I just want to find others. I am aware of only 16 cases of what I have. One died last September which was a blow to me learning.
I have already outlived the expectation of 4 – 8 months by almost 3 years now, I don’t intend to give up yet!
I was first diagnosed in 2015 with a Sarcomatoid Carcinoma and had reccurances in both 2016 and 2017 and I am stil battling the latest round of tumours.