A Small Update

So, where are we at now? I haven’t put up an update on here for a while.

As it stands my cancer is now in-operable, with that it means I can’t have further surgery to remove any new tumours that have grown after my last surgery on May 28th.

This to me is a bit of a shock as the doctors always said they would continue to cut them out. We do however have advances through chemotherapy and possibilities of other treatment, for now I have chosen to take the chemotherapy route as it will be partially targeted. This will most likely be my best shot at beating this or slowing it down.

As I have always said, how do we reverse something that is classed as terminal???

DNA sequencing is being done still, but takes time so until those results are back and after a small procedure is done to remove another tumour, there is very little that can be done with advancing the research from a DNA sequencing point of view.

I will no be having palliative nurses visit me at home, try control the pain levels, sickness and make sure that I am ok.

Over the next few weeks I will be posting all the findings and information that has been gathered.

Right now as I embark on chemotherapy it is not ethical to keep the go fund me going, as while I am recieveing treatment nothing further can be done, until we know the results of that treatment.

I will continue to post updates on here and on my social media and of course YouTube

Thank you to everyone for your support

About PeeWeeToms

So what's the story? Well in 2015 I was diagnosed with a Sarcomatoid Carcinoma. To say the least it was aweful, I have managed to get through three years now with it coming back with vengance 4 times. On the 29th December 2017 I found it had likely spread. This is my dialogue with myself.

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10 Comments on “A Small Update”

  1. I’m sorry you’ve had such bad news. Overdose on nutrition. It might sound crazy but it really does work! I am now 2 months past my terminal diagnosis. I was given 3 to six months to live. I have a brain tumour (glioma) I went online and found loads of people who cured their cancer with nutrition so I thought I’d try it. I had nothing to lose! It’s working for me. I’ll find out if I’ve made some more progress soon as I have my next MRI this Tuesday.

    Good luck! I hope it goes well for you!

  2. I don’t understand why you say it is “not ethical” to accept further donations on the gofundme page at this time. It was to help research the types of cancers you have so that someone else does not have to suffer as you have in the future. I hope you will continue to accept donations as it will help someone, somewhere in the future… who knows, it may be little Noah or one of your brothers! That is, if there is any kind of genetic component.

    It is your page, however, and you may do as you please.

    I think of you, your mom and family each day and check on your social media every morning, pacific standard time!! It makes my commitment to not trusting doctors and questioning all they do even stronger than before. You are a completely fantastic person in all ways, and I can only hope DNA sequencing results to get a good targeted chemo protocol happens in time to extend your life for a long, long time! Live Long and Prosper!!!!

  3. My thoughts are with you and your family, Daniel. I wish you peace, comfort, strength and love. I’ve really enjoyed getting to know you and your family through this difficult and unfair situation. You’ve touched a lot of people through your vlogs. I wish I had a magic wand and could fix this. I know in the future whenever I think of you I will smile. Thank you for sharing your story your humour, fears, anger… the whole raw lot that is your journey. Much love from across the pond, Superman. x

  4. Hi Dan , thanks for the update . I am so sorry you are going thru a bad time and I understand powerful drugs .. do you have nightmares? I do all the time and they can be very upsetting. I hope for good news for you soon. Love to you and your wonderful family .I hope your Mum is ok , none of this can be easy for her. Keep strong. You are an amazing soul. x

  5. I’m so glad you’re finally getting the chemo Dan. Your cancer is so rare, no one can say for sure how it will respond to the chemo. It could shrink it to a size where it becomes more manageable and less aggressive. That’s definitely likely.

  6. PeeWeeToms, it’s great to meet you from that england forum but sad to see that you have terminal cancer. even when I hope that you can fight it over. a person has expiry date

    everyone has expiry date – when it’s time to expire. no matter how advanced the medical is, YEAH you know what I am going to speak next.

    it’s not your mistake not your fault, u have no guilt no sin and no crime on this.

  7. I know you said to leave a question that you might answer later but not sure if this is the right place, oh well here’s my question. Where did the name peeweetoms come from? Is that a British thing? I’m in America. Thanks and prayers coming your way! xoxo

  8. I admire you. I don’t mean that as in a patronising “Oh this poor person has cancer” way. I do feel utterly sorry for what you are going through, without a doubt. You are so young, intelligent,handsome, full of life, interesting, and have so much to offer, and it seems so cruel that you have this illness, however as everyone knows, Cancer does not discriminate, just as some other illnesses don’t. I want to know if you have any beliefs? I don’t mean religious beliefs, but maybe you do have them. I just wanted to know what you think may lie ahead much later on. I have mental health issues, and used to have an absolute fear of death. I read a lot about this, and over time, I have become less fearful. I think when it is my time, I will be sad at leaving those few that I love behind but curiously excited about what lies ahead. You come across as being very open and honest, which is good, because what you have created in your website, will help so many people across the world. If you are up to feeling like replying, I would love to know what your views are, if any, about life after death. I hope you do have much more time on this planet, and maybe you will. Have you considered cannabis oil? It seems to be helping many people. I will pray for you. My prayers go to several places. You are very much a person who the world needs. Keep fighting. XX

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