When I was diagnosed with cancer, I didn’t know how I felt. I didn’t know what cancer was back then, I am glad I do now.
I tried to ignore it at first, they thought I had a soft tissue sarcoma, I didn’t have a clue what that was back in 2015, now I know more about sarcoma’s than I ever thought I would. After a few weeks passed they contacted me and told me that I had something called a Sarcomatoid Carcinoma, now looking that up online leads to grim reading!
I now know the actual grim reality and know that what I have is a pleomorphic sarcomatoid carcinoma as well as others. The others need more research and time, to understand on my part and I am not willing to try explaining them now.
So, when diagnosed my initial reaction was just the word “bollocks” and then “what do we do from here”, the response I got was they had got a clear margin and were happy they “got it all”.
Being naïve and not very knowledgeable on cancer or this rarer than rare type, I have now realised that there was no way to have “got it all”, I was spun a yarn to get out of an office.
Luckily it held off for a very long period of time for this type, two years almost but when it came back it came back more aggressive and vicious than ever, so in 2017 I was taken back in to hospital and had surgery again. It was indeed back, then again, a month later came back!
Again, spun that yarn, margins are clear, you will be fine. I obviously am not fine as the last week of 2017 it had come back full force! More aggressive, more tumors and spread!
Now, I am here at this point waiting for surgery on all the tumors which were initially found in December 2017, they know exactly how quick this grows and my bet is on someone thought it would have killed me by now, so they didn’t have to waste time on solving the problem.
Luckily, I am alive and still being stubborn and won’t be giving up that easily! The surgery can’t come soon enough! I really can’t wait for it to happen now as I am fed up of knowing this has been growing in me rapidly for over 3 months!
It makes me sick that the system is able to fail this badly!
Anywho, I am positive I will have a good outcome, terminal, incurable and the likes are not in my vocabulary anymore!